Reduce crisis in sicklers

Early diagnosis saves lives
Red blood cells that have abnormal genes with haemogloblin S that are SS (sickle-shaped) block blood capillaries and cause recurrent anaemia and pain to a child.

It is good to have an early diagnosis so that treatment can start earlier in order to contain the illness.

“When an early diagnosis is done by taking an ultrasound scan of the brain, the doctor can know how severe the illness is and what can be done to keep the child in check,” says Dr Henry Ddungu, a haematologist and consultant at Uganda cancer institute.
There are instances when blood circulation to the brain stops and the patient suffers a stroke depending on the severity of the condition. The patient may suffer paralysis or die but in hospitals with experts, this can be prevented.

Basic first aid can help
Usama Kyazze, a doctor at Clinix Hospital says the intense pain following a crisis can lead children to want to give up on life. However, pain can be managed with basic first aid. Kyazze cautions patients against using injectable painkillers without a doctor’s assessment.

What is important?
Constant counselling since the patient’s mood keeps changing and a lot of decisions are made in haste.
A close relationship between patient and doctor in case of an impending crisis.
A positive mind, because positivity enables children to counsel one another.

Visit sickle cell clinics for thorough body checkups to make sure children are free from any illness such as malaria, pneumonia and others that may lower their immunity.

Henry Ddungu, a haematologist and consultant at Uganda Cancer institute says self-medication is causing many sickle cell deaths. Pain relief injections like pesidine and tramadol, should only be administered under controlled measures.

Alternative therapy
“Previously, patients were only given a replacement therapy like folic acid as well as chloroquine and fansidar which prevented illnesses that could weaken their immunity,” says Ddungu.

“But with time, hydroxy urea was discovered. This is the only medicine that can reduce the symptoms of sickle cell but should be used only after a paediatrician or haemotologist have analysed the person’s condition and recommended it,” adds Ddungu.
Prevention better than cure: Preventing malaria, infections, immunising the child keeps them free from illnesses that weaken their immunity.
• Family support is recommended to avoid stress that triggers the attacks.
• Proper meals that consist all food nutrients should be given so that their bodies are well nourished.

Caroline Oucha, a sickler always has pain in the joints, a condition the doctor told her is caused by blocked blood circulation.
“Whenever that happens, before opting for painkillers, I place a bottle with warm water on the painful area. The blood will start circulating again and the pain will go,” says Oucha. “I take malaria tablets monthly and folic acid on a daily basis which has helped me keep strong and fight disease,” she adds.

For Oucha, having warmers is a must regardless of the weather because she needs to keep warm.