PWDs decry the high cost of healthcare

Persons with Disabilities (PWDs) from various groups gathered in Kanyanya, Wakiso district, to express their concerns about the high cost of medical services.

The group, comprising individuals with physical disabilities, spinal injuries, cerebral palsy, and dwarfism, cried out to the government for urgent attention, citing prevalent poverty as a significant barrier to accessing healthcare.

Myleen Kyomuhendo, a victim of spinal injury and a member of the Spinal Injuries Association Uganda (SIA-U), shared her heartbreaking experience.

"Out of 372 men with spinal injuries, only five can afford artificial insemination in hospitals," she said.

The cost of artificial insemination, which most men with spinal injuries rely on for sexual reproduction, is a staggering 10 million shillings, a price tag that is out of reach for many.

Kyomuhendo emphasized that this limitation not only affects their ability to have children but also takes a toll on their mental health and marriages. "It torments them mentally because some had not given birth before the time of injury and now cannot have sex normally," she added.

The group is calling on the government to subsidize artificial insemination services, enabling male PWDs to have children and enjoy a better quality of life. They also highlighted the need for medical personnel in health facilities to be trained to cater to the specific needs of PWDs, particularly those with spinal injuries or pressure injuries.

Apollo Mukasa from the Uganda National Action on Disability (UNAPD) emphasized that PWDs face numerous health-related issues that are often not adequately addressed in health facilities or are prohibitively expensive.

"The lack of adequate and affordable health services, such as drugs, catheters, and assistive devices, has greatly affected the wellbeing of PWDs," he said.

Susan Sabano from the Umbrella Cerebral Palsy Network Association (UCPNA) highlighted the importance of wheelchairs and other mobility devices for individuals with cerebral palsy. However, she noted that these devices are often expensive and not readily available, creating a significant barrier for families.

Isaac Isabirye from the Foundation of Persons Affected by Dwarfism-Uganda (FPAD-U) shared the unique challenges faced by individuals with dwarfism, including access to delivery beds, high delivery charges, and limited availability of drugs to strengthen their weak bones.

He cited the example of Sarah Short, who became paralyzed after reaching the age of 30, highlighting the need for targeted healthcare interventions for individuals with dwarfism.

The PWDs are urging the government to take immediate action to address these concerns, ensuring that they have access to affordable and inclusive healthcare services.