It took me 28 years to be diagnosed - Akellot

Ms Daniella Akellot who has  classical Ehlers- Danlos Syndromes (EDS), a genetic connective tissue disorder with symptoms including stretchy skin and joint hypermobility. Photo/Courtesy

What you need to know:

  • She advises those suffering from rare conditions to research about the symptoms before consulting a specialist.

In this third part (of four) series of covering rare diseases in the country, Ms Daniella Akellot opens up about having classical Ehlers- Danlos Syndromes (EDS), a genetic connective tissue disorder with symptoms including stretchy skin, joint hypermobility and fragile skin easily prone towards getting bruises. 

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